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Post by anirbas on Feb 27, 2013 23:25:46 GMT -6
Sleep fiercely evades me I doze in stops and starts to the sound of John Wayne's voice giving an interview from a time long past to a journalist in the United Kingdom
John, chain smoking cigarettes, coughing politely into his hand answering questions in typical John Wayne fashion
While sleep fiercely evades me my joints-embers, charcoal and glass shards
I have become both antagonist and protagonist I am my own hero and anti-hero This body a war zone A battleground of friendly fire
Prednisone and can do attitude my sword and shield in this first salvo
Sleep fiercely evades me I doze in stops and starts to the sound of John Wayne's voice giving an interview from a time long past to a journalist in the United Kingdom
Fitting, I should be listening to the embodiment of true grit as I climb into the saddle and head into battle with myself...
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Post by heartfelt7 on Mar 3, 2013 9:39:57 GMT -6
There is nothing funny about being sick (and it sounds like you really had a bad case), but this made me smile. You know me with my three-part "symbolism" (body, mind, and spirit). It sounds like you have been losing sleep because of the body, and I have been losing sleep because of the mind (thoughts/thoughts/thoughts). So many that I can't even write because I think about it too much!!! Oh well. Sounds like we both need rest. Rest for the body and rest for the mind. Hope you start feeling better.
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Post by anirbas on Mar 3, 2013 14:18:44 GMT -6
Wow. I was beginnning to think this piece had either totally bombed or scared folks off. I could see it was being viewed but, no one until you, Fierce Dora, commented. lol I kept thinking, it's just a poem...A poem, about a part of life for some people...
I am sick. No, I have been sick for a few years, but, fighting all the signs, or symbols as the case may be, pointing to something being off kelter. I have recently, been tentatively diagnosed with rheumatoid arthritis by my family doctor. He has started me on prednisone, short term, to deal with the pain and inflammation. RA, is an auto-immune issue, whereby the body attacks its own joints...Friendly fire...lol...
I've been pretty run down the past several months. Fatigued by the aching in my shoulders, hips, knees, feet and hands. About a month ago, not only aching, but, feeling like the joints are on fire while I am trying to sleep. My doctor thinks the sciatic event I had back in the summer was related to this issue.
Anyway, he has put me on an intense, but short course of prednisone for twenty days. I am also to be scheduled to see a rheumatologist for further and future treatments.
Until I started taking the prednisone, I was taking up to five aleve a day to deal with the pain.
He asked why I hadn't seen a doctor sooner about this and I told him, I thought I was just being a pansy. I thought I was just getting old. He laughed and said that's osteoarthiritis and I'm to young for that. But, that anyone of any age, can have RA, because it's an auto-immune issue.
I feel better just knowing there's a reason for the fatigue and aches, pain and swelling. Knowledge is empowerment. I feel better physically already taking the prednisone. But, the predisone makes me feel spacey and detached...lol...
Doc says, we've caught on to it, fairly early. That whatever the specialist recommends may revert some of swelling issues, etc...in my joints. Everything feels better except for that one nagging shoulder I'd like to hack off and throw into the fire...gigglegiggle...
And I still can't sleep worth diddle right now, because the prednisone gives you insomnia! Spaced out during the day and insomniacal through the night...Only me...
Thank you for feel better sentiments. I need them. I must get past this so I can keep on keeping on.
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Post by aims on Mar 3, 2013 20:59:54 GMT -6
Wow, Sabrina, sending thoughts of comfort and healing your way! that's a rough one and you are lucky they caught it early on a friends mother had it, was a tough one for her. as for the piece I think you hit the proverbial head on the nail, brought back sleepless sick nights to my recollection.
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Post by anirbas on Mar 4, 2013 14:51:06 GMT -6
Thanks, Amy, for thoughts of comfort and healing! I have been tired, alot this past year. Makes sense now. I've been fighting myself, no wonder I'm tired! lol I return to the doctor today to review blood tests. Woohoo! The prednisone is making me puffy like the Michelin Man, but, the joint issues are far better as a result of taking it. Plus, the course ends in nine more days. After today, on to the rheumatologist and whatever spells and potions he recommends. lol
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Post by anirbas on Apr 7, 2013 21:23:18 GMT -6
~Bring It On, To Coin a Phrase...
I dare you. No, I double-dog dare you. Bring it on!
So, this body is a battlefield? Thanks, Life. Still trying to figure out what I did that earned me this curve ball... As the lead in music for 'Serenity' goes, "You can't take the sky from me..."
I've given it some thought... Just a bit, here and there... And this is what I've decided... I don't care...I just don't care... I could go so far as to say, I just don't give a flying f*ck, but, ladies don't cluck like that... We, just say cluck, cluck, cluck...
Bring it on, Life! I've got this bitch of a card played. I can play the dual roles of both antagonist and protagonist, both enemy and hero.
Let's do this. It's not like it's the first time, I ever "danced with the Devil in the pale moonlight."
So, to coin a phrase... "Bring it on." I dare you... I double-dog dare you... Let's do this...
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Post by moseley on Apr 14, 2013 17:29:58 GMT -6
fire dogs of hell yes! well played.
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Post by anirbas on Apr 15, 2013 19:17:41 GMT -6
I dared Life to bring it on and it did, sum bitch. Met my new rheumatologist last Monday and she believes I have Pscoriatic arthritis. It's basically treated the same as RA, but, fifty percent of those diagnosed with it, do end up disabled. Well, if I end up at home on disablity, I've decided I am not going to whinge about it...(to much lol)...If I don't have to work, that will give me time to type up the next Great American Novel! lol And thanks for the read, Mose.
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Post by anirbas on May 4, 2013 22:47:04 GMT -6
~I Will It to Be So.
This...This pain... Though I may whinge and occasionally cringe... ...This...This pain...
This pain...This pain... I got this... Where there's a will there's a way and all that rot...
There's naproxen and prednisone and ranitidine to shield the stomach against the ravages of the medicine that heals...
And somewhere down the line, biologicals! Perhaps, even chemo! Oh, me! Oh, my!
This...This pain... This mother fucking pain... I got this...I got this...
I've stood at the graves of my children, both dead by chance and buried alive in the system...No man ever gave me these twin cracks fissuring my heart... Losing my children did...
This...This...This pain... I've got this shit...
Cause, this pain... This pain is physical, not spiritual...I got this shit.
Bring it on, Lord Nemesis, my mirror self... For, I am a battle ground of friendly fire...
This, shall end, the way it always does when I fight my only equal, myself... This shall end in a Mexican Stand-Off... Or, a stalmate, per se...
I will it to be so.
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Post by anirbas on Jun 16, 2013 19:27:09 GMT -6
~Refusing to Expect the Worst...
I think she's back... She of the coppery personality... Fiery and snappy... She's still a bit fluffy... And a tad gimpy...
But, by golly, by Jove... She's got pep in her limping step... And she can raise her right arm over her head, again! Why, just the other day, she shuffled and wiggled in childish delight, to 'Unwell', by Matchbox Twenty, as it's always, been her theme song, since it first hit the airwaves...
Plus, best of all, she can pop a squat right down to the floor... Okay, getting back up, she's has to push off that very same floor with her right hand... But, she's not been able to pop a squat for a blithering year! Since the summer of 2012. June, to be exact...
Yes, I think she's back. She with the rusty sword in her hand, with the copper colored personality... So, what if she's a bit fluffy and a tad gimpy... She's better than she was three months, ago... A year, ago...Three years, ago...
Ironic, it took being diagnosed with a disease to bring her back to herself, back from long corridors of pain without entrances or exits, for her to be able to work, if not wholly without pain, with a modicum of it, instead...
Now, if she could only write poetry instead of doggeral, again... Then, then the Mighty Universe would be a righted once more...
But, perhaps, that's expecting lightning to strike twice in the same spot...
You might ask, how do I know this, and so many other things about her?
She is me... Exploring the same old world with new eyes, these days... Hoping for the best and refusing to expect the worst...
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Post by phantasm on Jun 18, 2013 18:59:37 GMT -6
That's great news, Sabrina! Like they say on Galaxy Quest, never give up, never surrender!
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Post by anirbas on Jun 19, 2013 22:39:04 GMT -6
That is the game plan...But, it is, what it is...haha
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Post by firestarfairy on Jul 5, 2013 0:21:10 GMT -6
Sabrina... you have a way with words that I only wish I had.
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Post by phantasm on Jul 5, 2013 16:59:40 GMT -6
Any news lately, by any chance, nir?
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Post by anirbas on Jul 6, 2013 18:50:54 GMT -6
Thank you so much, Miz Firestar!!! Nice to see you hanging out in the "lounge" by the way!!! News, of a sort, Phantasm, thank you for asking. I feel like I'm holding my own, but, don't know yet, if this methotrexate is actually working yet, or not. The dosage is upped to eight, per treatment once a week, now. And if I thought I felt like a space cadet on four and then six, eight is...is...hmmmm...eight literally zombiefies me...lol...And I'm really fuzzy from the treatment for about four days. Not in a bad way. It's an interesting experiment. But, I must wean myself off the prednisone in order for my doctor to tell if the DMARD is working or not...? It's all good. All I know, is it's real good to feel like a human again. The past five years, then four, then three, then two, then one, I've just slowing rusted up...The last year, has been gnarly with pain and it's so good to be mostly ahead of that now. Woohoo!
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Post by pegesus on Jul 7, 2013 22:59:28 GMT -6
so art has been busy again.....i've been battling it now for about 7 or 8 years. osteoarthritis ( degenrative arthritis) is painfiull and miserable amd i do sincerely understand and sympathize. if you havent done so, do so now....file for disability. it takes about a year to complete but when its finally through it helps to take the worry about how you will finacially make itl....i was without water for almost six months befor it was finally approved and i started getting paid, but it was worth the wait....now i can pay the bills and just spend the days dealing with the pain. look at it this way, you always know when a storm comes in befor the weathermen do...but damn it hurts to know in advance. most of the time now i try to deal with meds that dont tear my guts up, when they do i stop taking therm for awhile to give my stomach a rest them im back on the pain pills ----just remember m'lady----we are the tough ones and can deal with it....when you live with it day in and day out you have to....so stand tall and know you are not alone.....
the words will return...if only in our heads on the good days they will become written words of strength and fight...the world be damned we will never give in to this curse....stand strong let it know who is the strongest.....who will fight and on the days when the pain wins out...pull in
till we can fight another day...show the world who we are what we are made of
my piece is said...my mind is strong....even if my body is in pain i chose not to give in and i figt this demon who wishes to take over i dont want you here....i dont want you to hurt like me....i wish i had the power to make you whole once more...but we still have our words
we still have our imaginations and the play upon the words....that will help stay strong.....stay migjty....if only for yoursef I love you m'lady nir....conquor the world for us....we need our champion back
pegesus
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Post by anirbas on Jul 8, 2013 20:42:06 GMT -6
Mary! Mary! Miz Mary Etta!!!!!! (sound of a chick doing the happy dance!) How great and good to see you here! Hate to hear you suffer from osteo art. That's a son of a beast, too. This, this isn't that kind of art, though...That, is natural as we age, to develop osteo art, even for those of us, in prime, physical condition. This, son of a beast, is an auto-immune disease, a three year old, or a twenty-five year old, or a forty year old (the age I was when I started having issue, but, thought it was osteo art and I was just getting "old"...self-diagnosis isn't smart haha) Anyway, I found out the other day, the methotrexate I am taking is actually a chemo treatment...I am already on chemo and didn't realize it...How funny is that? ? Just took my eight pills about an hour ago, like a good girl...And a Xantac...Chemo is a weird experience...I do not really suffer nausea, but, I do feel drunk as hell, after about an hour, or two and then I feel drunker...And drunker...And drunker...Weave when I walk and bounce off walls...Oh, wait, I already do that...haha... My family doc asked me back in February, why I waited so long to check into this...? I told him, I thought I was just getting old and told myself to ovary up and do what I had to do...Like work and pay bills...lol...He replied, he just loved patients that self diagnosed themselves... Also, found out the other day, I have a cataract forming behind my right eye...Also a symtom of pscoriatic arthritis...It also attacks the eyes...I had already learned it can also attack the lungs, but, mine are in peek condition even though I still smoke ciggies off and on...Yuk. Need to quit that shit...lol...In two or three years, the eye will require surgery, but, that's cool. I'm not ready to file for disability. I plan to work until I can't, but, I plan on being the other fifty percent that isn't disabled...I do not plan to be disabled...Fuck that shit...To young for that...I'm only fifty-one. Others need that more than me, now that I'm recovering thanks to all these wonder drugs even if the prednisone is making me fluffy as a marshmallow. I did, however, stop decorating cakes for a living about five weeks, ago. Don't miss it one bit as I thought I might. The trick with this pscoriatic art, is to keep moving without doing anything that will harm me. My body feels better moving alot rather than standing in one spot...Besides, the main damage, at this point, is in my right hand and right foot...I can still walk fast, but, I also hobble alot when the foot gets pissed at me...lol...Which is at least, half of my day...Traitor... Anyway, I'm not dying...That's a plus...I was negative for Lupus...That's a plus...And, the best thing for me, was to get out of the department I was in...It was a mess and I was in to much pain to keep dealing with all the drama...Plus, cake decorating was the only reason, I stayed in it...If I couldn't decorate anymore, and I couldn't...My hand started "clawing up" before and after the diagnosis...Can't form roses, daisies, iris or leaves with a claw...Roflmao... But, being in the bakery, also meant I had wet shoes, socks, feet and pants up to my knees almost every night from mopping the floor and hosing out four gargantuan fifty gallon and more "compost" cans. I was in and out of the freezer, constantly, which made me hurt more...As I stiffened up more and more, I could no longer throw forty and fifty pound boxes of frozen dough and other freight, which made my co-workers pissy...More drama...Long story short, PA was good for me, it finally forced me out of the bakery...I was only there to decorate...If I couldn't do that, no need to put up with all the shit just to make a paycheck... Jeepers, Mary. Look what you did to me...Got me yakking and digressing all over the place...This methotrexate doesn't help...It makes me yakky the first couple of hours...And then, it makes me drunk as a rabid skunk...hehehe... Don't be such a stranger, mon ami.
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Post by moseley on Jul 9, 2013 15:00:46 GMT -6
now, Nir, raise your right arm and repeat after me.....sorry, I am all out of Holy Books...perhaps Holy Crap, and I have yet to see Holy Crap, now, I would pay decent, not good I don't have that kinda money, but decent money for one piece of Vatican certified Holy Crap...who knows, I would make a rectory or something for it...then, didn't Holy Crap come from a rectory, what was the question? Yes, I will have a nice fluffy waffle, with lots of butter and maple syrup...mmmmm mmmm, OH YES, you can raise your right arm again! Where is Ernest Angsley when you need him? We all could start a good gospel medicine show and have some "healing"...but then, well, that ain't necessary...drats, ruin my fantasies(where are those waffles!)oh reality, thy name is overcoming and Nir, somehow, you have overcome, a good list(not a great list, face it you ain't no Helen Keller, just yet)but I will still scream "WATER!! WATER" with poor intonation as an homage!!!
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Post by anirbas on Jul 9, 2013 21:27:12 GMT -6
Roflmao so hard, Jam. I so needed that belly laugh!!!!!! Even though I laugh alot these days. Like the last four months...Holy Moses, Moseley, I can't stop laughing. I is well awarah I ain't no Helen Keller, Mistah Moseley, suh. Frack. I spoke to soon, when I was in here, last night though. Those magical eight lil' wafers I downed last night, made me nauseous as hell, today. Still feeling delicate. Yuk. But, I can pop a squat, again...Not been able to that since May 2012....And I can raise my right are, again...Which, I stopped being able to do, about five months ago...So, I got this one day of nausea...Better be all it is...lol Or I'm going to start complaining about the service at my rheumatologist office...hehe
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Post by moseley on Jul 20, 2013 23:00:19 GMT -6
Sometimes we treat children so delicately, but they are growing. They are healthy. They HEAL FAST. Then, we give adults as we age the hard line, grin and bear it. Perhaps we should be harsh to children and then as we get older, be kinder to the aging...as it would make more sense than the way we, as humans, seem to do things in some "societal" way. Wouldn't it be something if we could postphone that FAST HEALING when we are young to a much later time, like, when we really fucking need it! If the force in the universe that makes life is actually and really the God everyone says and thinks he is, I think then he too got it wrong...and should God be a woman or a she, well, she ain't never going to own up to it is she? But something is out of order with the way life goes and it is for these things like this when all the stresses of life do take a toll on us...everyone should be kinder to you Nir and eveyone aging, because these things are really hard to comfort and sooth, because they do not easily or even ever go away...and sure we "DO LEARN TO LIVE WITH IT"...but yeah, that just sucks! I borrowed five dollars I owe someone for that two cents...
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Post by anirbas on Jul 21, 2013 22:11:22 GMT -6
Roflmao! And loving every reading minute of it, Jams!!!!!!! hehe I don' wan' no pity, from "society". Frack 'em. I got my lil' fren', Pa. The dick is an honest buddy. He's brought me back to reality, the son of the beast. I thought, I was getting old, John. So, I just kept going...Drudge...Trudge...Drudge...Trudge...In my honeymoon years, I've been broken, no less. Poor David. lol Lord Lugnut still got the best thing ever! lol Had to toot my own horn! Nobody else will, eh, mon ami? Digression in full egression and progression, yesssss? lol Anyway, a three year, can have PA...I could have been in much less pain the last five years, IF I hadn't kept self-diagnosing and telling myself, "Get outta the fracking bed and go to work, B*tch! Baby girl needs a new pair of dancing shoes...Tights...School supplies...Clothes...Money for every high school fee in the world!!!! A dance t-shirt for this...For that....A dance t-shirt because the drill team ate together at Chili's...gigglegiggle...Getting a bit dramatic there....Soooooooooooooooooooooooooooooooooooooooooooo glad, Ivy and I are out of the public school system and have all that behind us. Wow, John, now that's she moved out, she's Mom's friend, again...lol...But, no, don' need no "scociatal" stinkin' pity...I got this auto-immune shit. I'm the female John Wayne, Gods Frack It! (Been watching to much Battlestar Galactica...lol...Finally watched 'em all. Still can't get it outta my head! )
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Post by anirbas on Jul 22, 2013 20:30:35 GMT -6
~Live and Let Live
Step aside, make a hole, make it wide I'm a warrior and I'm coming through
No, I haven't the time to battle with you I'm already in hand to hand combat with the only opponent worthy of me grappling with, myself.
So hold your debate. Hold you breath, if you have to. I'm not hearing what you've got to say. It's all negative banter, anyway.
I'm into healing and being healed...
Step aside, make a hole, make it wide... This warrior is coming through and passing on.
I told you, I ain't got time to carry on. I've only got time to live and let live.
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Post by anirbas on Jul 24, 2013 22:04:35 GMT -6
Um...About to learn how to give myself my own injection, once weekly. This should be an interesting experiment...Roflmao
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Post by anirbas on Nov 5, 2014 21:47:41 GMT -6
~For the Moment
Against one another we square off halves of the same coin flipping through the air
She meets me with a steely glare an arsenal of all pain no gain designed to stake the dance in my soul
Pin it to a wall to flutter, gasp and die I do not know why she chose me as her opponent I only know that she did and it is what it is
So, I meet her roars, fangs and claws a ripping with these paltry potions designed to soothe this savage beast that lives within me
I call it, throwing the bitch a bone Start the day, flipping her nambuetone and flexeril, swallowed down with my morning meal
Toss her a Cymbalta on my first break downed with healthy greek yogurt, fruit and honey Finish the day with a round of the first two
Enbrel once a week battery acid cocktail And when all else fails and I'm on the ground right where she wants me to be...
I finally give in throw the bitch her favorite bone-Prednisone! Then, she stands down.
For the moment...
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